Day 26- August 13, 2011 (Another dip in the rollercoaster)

Noah Stats
Oxygen Level: 24-36% :-(
Oxygen Machine: Nasal Canula
Weight: 3lb 1 oz
Day Nurse: Lori (another one...again!)
Night Nurse: Ashleigh

Today, Noah had a pretty uneventful day. He didn't have a bowel movement for Lori (although when I changed him at 6pm he had a small stool...) and his oxygen was about 25% the majority of the day. I didn't Kangaroo with him today because I knew that I needed to leave right after talking to the night nurse to go buy the breast pump for work that starts Monday. I wish I did though, I just love being able to hold him. Even if there are a whole bunch of wires around him, I don't care. To me, he's the most precious baby in the entire world.

As usual, I called around 11:30pm to get an update on how he had been doing, and also to see if he had gained any weight. When I called, Ashleigh let me know that Noah was up on his oxygen. He had been having a few desats (desaturations) and so she had to bump his oxygen up to 36%. I'm tearing up writing about this. I know that this ride has bumps in it...but I just wish that it didn't. The last time they went up on his oxygen like this is when they bumped him up to 6.0LPM. The nurse said that she mentioned the above information to the nurse practitioner and she said to just keep monitoring it for right now, and that they may do a chest X-ray if it continues. They were already supposed to be doing a chest X-ray tomorrow for Monday labs. I'm praying that Noah's system can adjust and his oxygen level can be reduced.

This journey is hard. I know that we put everything in God's hands. I try my best not to worry about anything, and be strong in everything. I look for the silver linings in all the news the doctors and nurses give us, pray over Noah everyday before I leave, and we pray for him at night. But some days, I feel sad, I cry, and I want to be left alone. I get mad at the nurse for giving me bad news, and just wish that things were better. I guess that's how I feel right now.

Lord, please watch over Noah tonight. Let him know how much we love him and care for him. Please continue to speak life over him, and help him to regulate his breathing pattern so that he requires less assistance from the oxygen machine. We know that you are the doctor by excellence and are able of any and everything. Please watch over our little boy, and let him continue to get bigger and stronger. We know that he has great purpose on his life and that despite these bumps that feel major but are truly minor, everything will be alright. Thank you for being who you are. For being the same yesterday, today, and forevermore. We love you and will continue to praise your name. Thank you in advance for making our little boy all better. In Jesus' name we pray...Amen.